Family holding fundraiser for child with Cystic Fibrosis - WTVM.com-Columbus, GA News Weather & Sports

Family holding fundraiser for child with Cystic Fibrosis

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COLUMBUS, GA (WTVM) -

Eve Brown, 11, would love to attend middle school like any other 6th grader. Unfortunately, catching other people's germs could do more than just make her sick.

Eve endured her first surgery when she was only 5-days-old. Ten days later, she was diagnosed with Cystic Fibrosis, a life-threatening disorder than makes thick, sticky mucus around her lungs.

Since then, Eve has undergone eight more surgeries. She now has a permanent feeding tube in her stomach to receive IV treatments and supplements. Only 43 percent lung capacity is left in Eve's right lung, while her left lung no longer functions at all.

Eve's mother, Natalie Brown, is not without hope and plans to do something to change her daughter's fate.

"Eve wears an oxygen mask with tank at night, because her oxygen level drops," Natalie explains. "Next to a double lung transplant, Eve also needs heart surgery to remove a valve… Eve also has lot of bacterial infections in her lungs because of her diseases she's dealing with."

Despite these challenges, Eve has lived an active life so far. She loves arts and crafts, and enjoys going to karate whenever she can. She even has a purple belt.

"Eve takes an hour and half nap to prepare for her karate class," Natalie explains. "She gives it her all for that 30 minutes she's in karate. By the time she's out, she's white, pasty, out of breath."

Natalie believes the answer lies in Texas. She says a double lung transplant is available for Eve as long as they can get her to Texas by September and be listed as Texas residents. She believes there is a 90 percent chance that Eve will make it on the donor list by September 11, 2013, as long as they can get her there.  

Natalie say that their only major problem is transportation and living expenses. The car she shares with her husband is not in stable condition.

On Sunday, August 25, 2013, the Brown family will be hosting a Spaghetti Fundraiser Lunch at 12 p.m. in order to raise money to get Eve to Texas. The event will take place at Midway United Methodist Church on 4442 Buena Vista Road in Columbus. The family will be accepting donations and any other support people want to give.

"If all goes well," says Natalie, "Eve will wake-up with two chest tubes, ICU, and then after three to six months, Eve will come home with new lungs.

For more information about the fundraiser, or to RSVP for the event, call 706-561-1230.

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