National organization raises money to fight muscle dystrophy in Auburn

National organization raises money to fight muscle dystrophy in Auburn

AUBURN, AL (WTVM) - Nearly 30,000 people in the United States are currently battling ALS and thousands more fight muscle debilitating diseases on a daily basis.

The Muscular Dystrophy Association (MDA) is doing their part to help raise money to research and fight muscle dystrophy.

MDA hosts walks around the country to help raise awareness and money for these diseases, this year marked the first time they made their way to Auburn.

Duchenne Disease is a disease that now affects one in every 25 boys.  Alex McCarty has Duchenne's Disease and he is going into his senior year at Auburn High School and will graduate in December.

Alex was diagnosed with Duchenne's when he was six years old and by the time he was nine he had lost his ability to walk.  

MDA has been a huge help to Alex and his family since his diagnosis.  MDA has a clinic set up where patients can see all of the doctors they would need to in one stop.  But that is far from the only way they help.

"They also do an MDA summer camp and he has gone since he was six years old.  This year he graduates he is 17 and they can only go through 17.  So this will be his last summer so he is sad and I am sad too," said Kathy McCarty, Alex's mom.

Alex is the only student in Auburn's school system that is battling a muscle debilitating disease so camp gives him time to be around kids going through the same things he is.

But the McCarty family's sadness about the last year of camp was put to the side today.  Alex is a huge Auburn fan and he was thrilled to meet members of the Auburn basketball program including head coach Bruce Pearl.

"I got the chance to meet Alex the other day he's over at Auburn High School, he has got challenges but he is going to high school like other kids are going to high school and that is so important for him.  And his attitude is so great.  When he sees the community come out to support him and his challenges, I think it is pretty uplifting," said Coach Pearl. 

Despite the weather, MDA was able to reach their goal of raising $12,000 with the help of a $1,000 donation from Coach Pearl and his staff.

If you would like to help donate to MDA you can do so by clicking here.

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